Donna would sit in the living room watching TV wrapped in this pure white warmth while I kneeled at the coffee table and made pill packets for her next chemo treatment. I would count out the number of pills on the glass top. Using my fingers to to push Mondays three, Tuesdays two, Wednesdays one to locations like tiny pin drops on life’s maps. Then use my pinky finger and slowly navigate them over the edge of the glass. They dropped one by one into small brown paper envelopes assigned the date. Each one had a responsibility. We all did.
Mostly I sat next to her watching TV. ‘The Sons of Anarchy’ with Kurt Sutter as Jax Teller was her crush. She loved the spelling J A X. It was her, all about communication and the uniqueness of words. Those winter evenings, burrowed under the electric blanket, Donna would turn to me right before the show started, and say, “Jax is starting. I do not want to hear a peep out of you for the next hour.” She was not dead yet.
We would playfully debate what setting the blanket needed based on the temp outside and her mood, elevating the importance of this blanket to a significance far greater than its utility. It was a moment of reprise in the middle of a terminal illness concert.
The smaller orderly raised headboard of the gurney so Donna could see forward whether she wanted to or not. These past three years the future was never discussed. Being admitted to the hospital a week ago silenced any possible discussion of the future as if a needle was lifted off a record. Everything we witnessed and felt for three years and especially this week was silently understood. No denial. It was just an understanding. This story was being moved to its not so happy ending.
We looked at each other. No smiles. Our eyes touched recognizing the seas of emotions roiling behind them. I reached for her hand. For thirty years we walked our life together holding hands. Donna would say with a joy, “Our hands fit so perfectly in each others. Why?” They still do even if only one of us was walking along side of the other.
Behind her half closed eyes Donna is thinking: “Holding Mark’s hand is comforting. It always was. I am sapping his life as he comforts me. He needs comfort he needs safe he needs to feel all that I ever felt for him. Not this. Not now.”
Donna smiled to herself returning to December 1989. “It was a perfect solution. Wear gloves in the house.” I thought it was for a week. Then Mark asked me during our Sunday dinner: ’Why the gloves?’ I’ve been cold I said unconvincingly. ‘What?’ He looked at me. I began to cry. ‘Im sorry Im sorry please don’t be mad. Please.’ I removed the glove from my left hand and held it nervously up to show him the diamond ring I bought. Tears were flowing. ‘I traded the ring you got me for this one. It is bigger but, it is an antique Rose cut that was in an estate of a Jewish family that escaped Germany.” I wiped my tears and looked at Mark. Coursing rivulets of guilt consumed me. He smiled. Kissed me. ‘It’s okay I love you. Besides your glove thing was wearing thin so I knew something was up. At least you didn’t upgrade me,’ I thought I felt guilty then I new all was well because I laughed. He got me.
The taller orderly began steer Donna’s journey. The other orderly retuned to the room to clean and prepare it for the next patient.
Room 9D06 faded behind us as we navigated the hallways. Room 9D06 became the distant shoreline of surrendered hope. The gurney wheels echoed its rhythmic ‘whack whack whack’. Marking time.
This part of the hospital was a medical/surgical floor with staff stations located every few rooms. Nurses and physicians stood looking at charts in brightly colored plastic binders while others sat at keyboards typing notes. The patient rooms were hives of family members or staff serving medications to patients in beds or sitting in chairs. Sunlight was always present in the 9th floor rooms. The brightness felt clean and illuminated hope behind the scrim of illness, the buzzing of equipment, and the voices of families.
We reached the elevators. Reluctantly I released Donna’s hand and carefully placed it on the blanket. I pushed the down button. We waited, to the left of the doors, looking up at the numbers on the panel silently counting 14, 13, 12, 11, 10, 9. The doors opened the cab was empty. With the skill of a NYC truck driver on a narrow oneway street the gurney was placed in the cab perfectly centered without a touch to a wall. I pushed the 4th floor button.
For three years Donna and I knew where she was going with or without an elevator. We knew where this journey would end. I wanted this elevator to become a Star Trek Transporter and take us away somewhere anywhere. I closed my eyes and wished and wished. I wanted to be Nina, our Westie, who marveled at the joy of an elevator. You get in this room, the doors close, and then there you are walking outside. Magic. Nina was transported somewhere where she wanted to be. That was not happening. Donna and I were going to where we had to be.
We rode in silence to the fourth floor and exited. The 4th floor was noticeably less active and silent. The halls were narrow and went left to right to left in sharpe angles. The gurney steered perfectly making the tight turns with care. The sound of the gurney wheels in the vacant halls echoed WHACK WHACK WHACK. All my senses became focused and pointed. We were no longer part of a busy patient care floor. Here there was a sense of isolation. Alone. I felt we were being watched by unseen eyes hidden behind an imagined overgrowth. Unseen eyes who knew more about my future and Donna’s present.
A final left turn was made and we stopped. In front of us were pale green double doors. The orderly reached across Donna’s supine form and loudly slapped a metal plate. Electric doors shuddered and opened. We had arrived at the hospice unit.
A few seconds of silence and the ‘whack whack whack’ began again slower and softer. The doors closed and and in my mind they whispered ‘welcome’.
Me: “It’s very silent. Not like it is upstairs”
Orderly: “I come here and it’s like this isn’t the hospital. Like it’s somewhere else, y’know what I’m saying?”
Me: “I know peaceful” (a pause) “Without all the machines beeping, staff darting about, and families talking. It feels…”
Orderly: “I hear you. Upstairs is for people who’ve got things to do like get better and go home. In hospice it’s quiet, like you know where you are. You get it?”
Me “Do you frequently bring patients here? Does it make you sad?”
Orderly: “Over time it’s not what I thought a hospice would be. I always thought it would make me run, y’know? Like where peoples are dying. This kinda seems like a rest stop now. A place of peace before... Just keeps me from, you know, (almost a whisper) thinking hospice.”
Me: “Perhaps giving death agency is what hospice is.”
As the gurney navigated a harshly lit florescent hall. I looked into the dark rooms lining both sides of the hall. Family members in silhouette stood by bedsides. Emotionless eyes looking at vacant faces lying in beds in silence. All were pale, mouths open, dentures missing, sallow skeleton hands clutching blankets to hold them in the present.
Room 15 was on my right. I peered through the darkness looking more closely trying to see faces to understand where I was now? Hope abandoned us when we left room 9D06. Where Donna was going? Where was I was going?
Theodore was the name on the placard to the left of the door frame. Who was he? Clearly he was the elderly, frail, grey haired gentleman in the bed. Standing at the foot of the bed two women. One was elderly as well greying hair wearing a black sweater, jeans, and flats. The other woman was young. Perhaps 35 dressed for work. Both were silently looking at Theodore while he slept, if that is what you do in hospice, willfully sleep.
The hall lights darkened my left hand released from the gurney. I was standing next to Theodore and two women. The room was darker. The windows were dark. There were just a bed, chairs, and an IV stand. The three faces were bathed in a light. Not a harsh light or ethereal. It was just light.The faces were not the ones I saw from the hall. There was no sign troubled, pained, and lost. These new faces were the same but at peace.
“I am so sorry I don’t know what happened. I didn’t mean to come into your room. Please forgive me.” I stammered looking down at my feet embarrassed. I attempted to to back out.
“It is fine please don’t apologize. We were expecting you.” Said the older woman. The younger woman smiled and nodded, “Welcome”. She paused, “Welcome is such a terrible word here. It’s not as if this room, this place can ever feel welcoming on any level. You are here, we are here, but more importantly Donna is here.”
WTF?
“My name is Mable and this is my daughter Rachel.” Mable pointed to the man in the bed, “Theadore’s my husband. Rachel’s dad. You’re Mark. Your wife Donna is on the gurney.” My mind was racing with questions and frozen at the same time.
I looked at Theadore on the bed. He did not appear as he did from the hallway. He was no longer gaunt and frail. Theadore was younger and clear eyed. He looked at me with a smile of recognition, “Not to be redundant, Welcome.”
“Welcome to what? This dimension a place that does not exist a place that I am making up in my head.” I said
More WTF. Donna? How did they know? Who are they? What are they besides what I can see? What is this? Have I just lost my mind? Has the reality of Donna’s foreshadowed death just days away driven me to hallucinations?
“Look I don’t know what is going on or if this is a joke. I’m confused and afraid. Please tell me what is this?” my voice plaintive
The older woman spoke, “We’ve all had that reaction when we entered here. Mine was fear too. It took me time to understand this world and more time to find my place in it. Trust me you will too.”
“I still don’t understand. I we are in a hospice. Donna is out there on a gurney being wheeled to her death and I am in this dream/nightmare state with people who looked one way out there” I frantically pointed to the hall and the gurney, “and another here. I need to be with her to be her caregiver.” Pleading nearly in tears.
The daughter in soft comforting tones: “It will be fine you’ll see. You are not separated from her. This and that exist simultaneously.” Pointing at her dad and Donna.
Rachel turned to me her eyes were the lightest of blue and her face still carried freckles across her her nose. From the hall I would have never seen those features. Out there I saw fear, bereavement, and sadness.
“The dying have created this place or state for us. It is not universal. Not everyone can find it. I am not sure why but, many miss this connection. This place.” Rachel turned away as her voice trailed off.
Mable touched Rachel’s arm: “I know Rach. I wish everyone could be here.”
“What is here? Why here? I am so lost. Help me.” More pleading a bit louder and closer to whining. You know when your dad reads you Peter Pan at bedtime and as much as you’re charmed and enthralled but you just want to know how the fuck did that happen? Where did Peter come from? Tinkerbell? Fly? That was my state right now.
“Donna made the introduction to this place and to us to let you know where and why. She saw you were hurting. She saw caregiving and her death was crushing you. She was hurting, not physically, but emotionally knowing what her death would do to you.” said Mable
Theodor was behind me and spoke. I turned: “I have CHF. I was diagnosed four years ago with stage 3. Last month it progressed to stage 4. It was time for me to die.”
Mable moved to the side of his bed and reached with her hand and touched his face. Her eyes and his eye were silent. The light that was on them moved with them.
Theodor closed his eyes and spoke: “I knew my death was an emotional horror for my wife and daughter. Our lives were simultaneously being drained. The closer to my death I moved the wider the gap between caregiver and loved one became. We were loosing each other as loved ones. Our lives together were tasks not joy. Caregiving became the carriage carrying me to my death. It submerged our love for each other.”
Rachel still standing at the foot of bed” “Dad, it was not like that at all. Caregiving was what you do for love. Period.”
Theodor laughing: “Rachael you are the most adorable daughter I have. I love you so much. I think you get this pollyanna from your mom.”
Rachael with a smirk: “I am your only fucking daughter so that statement falls a bit flat. Yes you are dark as hell so it is a mom gene.” There were small giggles in the room.
Turning to me Rachel spoke waving her finger to the room: “Mark what you saw from the hall is what we all are here. It’s what the world sees. This now right here where you are is where we were before Dad got sick. A before time. That is what happens in this place. I call it MemoryLand. Mom, dad , and I are our memories. We are here with those memories. Not simply reliving them.”
Rachael waves her hand bigger circles. “This is were those of us who are truly connected with our dying loved…” She stops and tilts her head. “I don’t know. I can’t explain it. Dad will you please tell us.”
“Rachael I’m not sure I understand either. All I can do it describe what I see.”
Theodor stretched a little and rolled his head thinking if he loosened up his neck it would help him put words to things that words may never explain.
“Mark there was no clicking my heels three times or a snap of fingers and poof MemoryLand appears. When I entered hospice I surrendered, retreated into a world of memories. To tell the truth, which the living don’t really know those of us who are dying do that.
We find memories where we were whole and happy. The reality of that.” Theodor pointed to the hall. “is it’s a crushing horror filled place. MemoryLand is a glade where I, Mable, and Rachael are connected though our memories. It is not denial nor escape. The reality of death is still very much present and painful for us all. MemoryLand is the animation of our connection and love through active memory and emotional sharing. Not just between us but with others who are part of MemoryLand.”
The room is silent now. The three look at me trying to measure my state of disbelief. Still unsure what I am seeing and hearing. I nod. It seems polite to nod.
“You were brought here by Donna. We are all brought into MemoryLand by our dying loved ones. They find MemoryLand first. They can see it and when they close their eyes there is an acceptance of this, call it a gift. Not just for them but the ability to share with their loved one. Our lives are ending. Your knowledge is expanding through the wound of death and grief.” Theodor continues as his face registers awareness and knowledge.”
Mable clutches Theodor’s hand tightly, “Mark, MemoryLand is not a healing ointment. It will not erase the pain, save the dying, or give us peace. It is a place where through our common hurt and pain we find light and understanding in a much larger world than the three of us. Grief never goes away it just becomes a trusted spirt within us.”
“Many of the dying do not find the gift of MemoryLand because their loved ones or them may not be in a connected state. Or they may not understand the pain that is part of this contract of love. The reality of death evades them. They may be blind or unaware of the pain and grief. It is odd to think that the pain of grief is a doorway to MemoryLand and this trapeze of connections.”
I think I understand, to a point, “So what happens now? How do I find you again? How do you find me? Are there others?”
Rachel smiles, “We find each other. We just know who is part of MemoryLand. It is clear to us and not others. Which is sad for me because what is here, this MemoryLand, is magical in a way. Again, it does not mask, hide, or refute the pain of my loss and grief.”
Rachel continued: “No one wants to be here. No one wants to suffer the fear and grief of loss. Our connections with each other though memories and stories is the logical extension of their death our grief. You’ll see. We, those of us connected to MemoryLand, will appear to each other when needed, not only to help you but for you to help others. This is a community of memories and grief. The wound of grief allows light of knowledge to enter when it is not locked away. It is part of this community.” Rachel looked at me and smiled.
I found myself standing next to Donna on the gurney. I looked into room 15 with a new sense of recognition and hope of seeing what I just experienced. No, all I saw was the gaunt dying face of a man and two women suffering. I shook my head, held Donna’s hand, and continued to walk with her.
The gurney entered room 25. It was dark. The bed was neatly made. Faded teal walls displayed invisible cave drawings of those to who rested here before Donna. Two chairs and an end table surrounded the bed in mock anticipation. Outside the windows on the left was an internal courtyard with rusting AC equipment. Not the park that was seen from Room 9D06 in the hospital. How long would she be in Room 25? There was no expectation of discharge only release.
Room 25 became a teal blue rowboat named ‘Hospice’. Donna was gently moved to the bed. I place her teddy bear Ruggle’s next to her. They both kept each other safe. As she reclined in the bed looking at the drabness surrounding her Donna was preparing to be pushed from the dark wet sands on shore onto a calm lake at sunset. How long would the wake of this rowboat remain?